Lived experience of dementia research

This is our story
A qualitative research report on living with dementia

This is the story of living with dementia in New Zealand.

This report tells the story of the diverse lives and experiences of 49 New Zealanders living with dementia and explores what it means to them to live well with dementia. 

Alzheimers NZ commissioned this report with Litmus to share these experiences – with other people living with dementia, for those supporting people with dementia, and with decision-makers.

People with dementia contribute positively to New Zealand. They are strong and courageous advocates for other people and those living with dementia.

It is our hope that the report will prompt a long-overdue scaling up and improvement in services and support for people living with dementia.

Click here to read the report (PDF)

How can we bring about change?

Implement the six steps to a solution

Dementia has largely been ignored by successive governments for the past ten years. But the government does not need to look far for a blueprint. In fact, one already exists. Read our Briefing to the Incoming Minister (PDF) here. 

Around five years ago the “New Zealand Framework For Dementia Care” was developed. Building on this, we have since presented the government with six steps to a solution. These are:

Pledge your support for the Dementia Declaration

“Our lives do matter, and it is time for us to be heard.”

The Dementia Declaration is the result of people affected by dementia getting together and identifying what we need to live well. It has been developed by people living with dementia on Alzheimers NZ’s Advisory Group.

Click here to read the Dementia Declaration
Click here to pledge your support by signing the ActionStation page