I have dementia
This part of our website has been written with the help and advice of people with dementia. Their experiences, practical tips and advice show there are different ways of living with dementia.
What happens when I am diagnosed with dementia?
Being diagnosed with dementia may come as a shock both to you and those close to you. However, much can be done to ensure you remain as independent as possible and can continue to enjoy life.
It is important for you to know:
- The changes you are experiencing are because of the disease
- You may have good days and bad days
- The disease affects each person differently and symptoms will vary
- Trying different ideas will help you find ways of coping that are comfortable for you
- You are not helpless; there are ways to help yourself cope
- You are not alone; there are people who understand what you are going through and can help you
- It is very important for you to talk about your changing feelings with somebody you trust
- It is helpful to minimise stress. Being able to talk about the diagnosis and trying to accept it often helps
Be positive and concentrate on the things you can do, not the things that have become too difficult. If you haven't got the information or support you need from your GP or specialist, keep asking. Find a GP or specialist who can explain to you what to expect in a way you understand. For more information on diagnosis and assessment, please click here.
Getting support
Being diagnosed with dementia can be a very worrying time. It is important to remember your GP, social worker and local Alzheimers organisation are available for support. There is a whole community of people and organisations out there to help you. Don't be afraid to meet new people - chances are, they are going through, or have gone through the same thing you are going through.
Don't be afraid to ask for help. We all need help at some point in our lives. The more help you can get, the easier your life will be. Some people find it useful to talk to a counsellor. It is important that you feel comfortable talking to your counsellor, so take the time to find the right one.
More useful information:
Telling other people about what you are experiencing
Keeping safe
Making things easier
Everyday tips