Supporting someone

When someone you care about is diagnosed with dementia it can be a hard piece of news to deal with. The diagnosis may not be completely unexpected, but it can still be difficult. 


You are likely to want information and support. Your local Alzheimers organisation is ready to help you and put you in touch with other agencies that can also provide support.

 

 

 Getting support

Your local Alzheimers organisation provides a range of services to support and guide people and their families following a diagnosis of any form of dementia. Your GP can also advise you about services in your local community.

Services in your community might include:

  • information, education, support and advocacy services offered through your local Alzheimers organisation
  • support through your Needs Assessment and Service Coordination Service (NASC), such as:
    • assistance with household tasks
    • assistance with personal care needs, such as showering, dressing or supervising your medication
    • day programmes
    • carer relief
    • respite services
    • residential care
    • support with ready-made meals
    • subsidised taxi chits to help with transport costs.

The GP who is looking after your family/whānau member should give you advice and support, explain things so you can understand them and answer your questions.

Although it’s your family/whānau member who has been diagnosed with dementia, you will very likely be present at their doctors’ visits and will need to understand what is happening to them.

Some useful hints to use when seeing the doctor:

  • Make an appointment at a time of the day when you both feel your best.
  • Make a list of questions before you go – it’s a confusing time and there’s a lot of information to take in.
  • Keep a folder about conversations you have had and any brochures or information sheets you have collected – even ask the doctor to write things down.
  • Don’t be afraid to speak up for yourself and/or your family/whānau member who has dementia.
  • If you don’t understand what is being said, ask to have it explained in a different way.

 caring for your loved one

If you are involved in the direct care of your loved one, there are many situations and issues that might arise that you are unsue how to deal with. More information and advice on situations you may encounter are in the links below. 

Personal care


Communication


Good nutrition


Incontinence


Intimacy and sexuality


Sleeping


Travelling
 

 looking after yourself

Telling people

Just as your family/whānau member is having to deal with telling people of their diagnosis, you will probably have to tell people, too. Giving your friends and family bad news is difficult and everyone reacts differently and often unpredictably. But they can’t give you the support you will need unless you tell them what’s going on.

If you don’t know who you should tell, ask your GP or your local Alzheimers organisation for guidance.

Adjusting

It’s totally normal to feel a whole range of emotions after a family/whānau member has been diagnosed with dementia. Living with dementia is a big adjustment and sometimes it’s hard to know how you ‘should’ be feeling.

  • Don’t deny your feelings: whatever they are, allow yourself to feel the way you’re feeling
  • Share your feelings: talk to another family/whānau member or friend
  • It’s okay to cry: it’s true what they say – tears can make you feel better
  • It’s still okay to laugh: laughing releases ‘feel-good’ chemicals in your body
  • Write it down: some people find it helps to record their feelings and experiences
  • Get out and enjoy life: do something you enjoy and focus on how good that makes you feel.

Ask for help

Supporting someone with dementia often isn't easy -  but there is help out there for you – both practical and emotional.

There are support groups for people who have family/whānau members dealing with dementia, find them here or call 0800 004 001 to reach the one near you.

We also have a range of Booklets and fact sheets available for download which may help. Hard copies can be ordered from your local Alzheimers organisation.


There is help available for you as you care for someone with dementia, contact your local Alzheimers organisation for more information.